Monthly Archives: December 2015

A Big Bang Theory-Style Review of My Week

Since I’m weird, I decided to write an account of recent events in the style of Big Bang Theory episode titles and synopsies.  Here goes!

The Star Wars Spoiler Dilemma:

Justin is afraid that his coworkers are going to share spoilers about the new Star Wars movie and decides he must see it this weekend.  Kati decides she must Netflix and binge-watch episodes 4-6 so she can see the new movie with Justin.  (she would like it known that she has, in fact, seen most of A New Hope, but that was forever ago.) She is outraged to discover that everyone and their grandmother has wait-listed every copy of episodes 4-6 in existence EVER.

The Cacao Powder Mishap:

Kati opens a shipment of hippie-chick organic stuff only to discover that the bag of cacao powder has sprung a leak.  After washing her hands several times, she still smells like cacao and will likely go to her grave smelling like cacao.  Which is, admittedly, better than smell that ensued the time a baby got sick and puked all over her.  

The Geekery Realization:

Kati plays a game in Facebook in which you replace random words in movie titles with the word “spoon.”. Every title she lists could be considered geeky, and she decides she has lived with Justin too long.

The Indiana Complication:

Kati is feeling like she is on top of holiday prep until the Christmas cards she orders online somehow end up in Indiana, forcing her to frantically run to the store for more cards.  

The Norbert Suggestion:

Justin mentions a coworker’s service dog in passing.  When he can’t remember the dog’s name, Kati vehemently suggests that they call him Norbert, much to Justin’s chagrin.  

The Lizard-Spock/Fire Interlude

While waiting outside during a fire in one of the other apartments, Justin and Kati play “Rock-Paper-Scissors-Lizard-Spock.” While writing this post, Kati remembers that the game was her idea and cannot believe what a geek she’s become!

Things I Wish People Understood About Chronic Illness

1.)  Chronic illness does not take the weekends or holidays off.  I have had to spend Easter and New Year’s Eve in bed more than once.  It sucks but there is nothing I can do about it.  Please don’t make me feel any worse about this than I already do.

2.)  I’m not unreliable.  My health is.

3.)  Just because I may not use my crutches or wheelchair on a given day does not make me all better.

4.)  I get the best results when I combine traditional and alternative medicine.  It’s very annoying when people tell me that one is better than the other.  There are pros and cons to every treatment.  When dealing with complex illnesses, you have to pull out all the stops and use everything you’ve got.

5.)  I’m sick to death of unsolicited medical advice.  Please don’t go there.

6.)  It’s possible to be allergic to natural treatments.  Some natural treatments can also make symptoms worse for some people.  I am allergic to calendula (an ingredient commonly found in natural eczema creams), and ginger essential oil makes my nausea worse.  This does not mean I am refusing to use all natural remedies.  This means I know my body.

7.)  I know more about my conditions than some doctors.  That is not half as frustrating as when they pretend they know when they don’t.  If it’s not their specialty, it’s understandable that I know more than they do.  I wish they’d admit they don’t know what they’re doing and send me to somebody who does.

8.)  Losing fantastic doctors to moving and insurance changes can be very stressful and devastating.

9.)  Having multiple chronic illnesses is more common than most people realize.

10.)  Taking medication with significant side effects does not mean I am being cavalier about what I put in my body.  It means that I have carefully decided that the side effects are nothing compared to the disease itself.

11.)  There are times when I have to clear my social calendar and focus on taking care of myself for days of even weeks at a time.  Complaining about this will not change it.  I promise i hate this more than anyone else does.

12.)  Treatment is rarely one-size-fits-all.

13.)  Getting an accurate diagnosis can take months or years for some people.  I started having symptoms of endometriosis in 2006 and was not diagnosed until 2009.  Thankfully my fibromyalgia and IBS were diagnosed almost immediately, but not everyone is that lucky.  I’m having joint pain and dislocations of unknown origin, and I have no idea how long it will take to get that diagnosed.

14.)  My definition of an “improved quality of life” is not the same as a healthy person’s.  To a healthy person, it means being able to do as much as you want.  To me it means being able to do some of what I want, and getting to a place where I am content with that.  I don’t do physical therapy with the intent of someday running a marathon.  I do it with the intent of hopefully someday having a bit less pain and fatigue when I walk and do everyday tasks.  It’s not pessimism; it’s realism.  I’m a human being, not Superman.

How about you?  What do you wish people understood about live with chronic illness?

Love/Hate Update 12/2/15

I know my blogging consistency has been craptastic lately.  And realistically, I’m not sure how soon that will change.  I do want to write more (blogging and otherwise), but right now my PT sessions and my PT “homework” is taking up most of my energy.  I’m also realizing that I just don’t function well when I don’t keep my living space clean and organized.  So that’s where most of my time and energy needs to go right now.

I did manage to throw together a love/hate update, so here you go!

Love:

-The new apartment!  Justin and I were housesitting for my parents while he was in school.  (They are now retired and RVing.)  We moved into our own place at the end of October.  My body LOVES it here.  There are three elevators, so there’s a plan B and a plan C if the one closest to our unit breaks down.  We have our own washer and dryer, so I can do several teeny loads instead of one big mammoth load.  The building is only 15 yers old, so there aren’t any mold issues.  My asthma has been flaring up a lot less since we moved here.

-reading about random acts of kindness

-green tea, all kinds of flavors!

Hate:

-systems that perpetuate spiritual abuse and other types of abuse while pretending to have it all together.  (I’m talking to you, Duggar parents!)  Toxic chemicals come with warning labels.  It should be the same for religious institutions.

-all the crappy societal messages about how we should hate our bodies and shame ourselves for indulging in holiday goodies