Tag Archives: general updates

Love/Hate Update 7/3/2015

This is going to be super quick because I feel like crap on a crayfish, to quote “Parks and Recreation.”

Love:

-“Parks and Recreation”, speaking of which.  I just got the schedule of events for my town’s Raspberry Days festival, and now I can’t look at it without thinking about the show and laughing hysterically.

-Lara bars.  Seriously, those things are saving my life right now.  No gluten or soy, but plenty of bonkers awesome deliciousness complete with a great carb/protein balance!

-teddy bears.  Don’t judge me.

Hate:

-the fact that my insurance company thinks 12 tabs of Zofran (anti-nausea drug) a month is sufficient.  Methinks that decision should be made by professionals, as in people who actually use the stuff and know how many tabs people actually need.

-today.  Seriously, today needs to die.  I woke up feeling absolutely miserable and nothing I’m doing is helping.  I think my body morphed into an angry toddler when I wasn’t looking.

-the fact that this is the second holiday I’ve been sick for this year.  I spent this past Easter at home on my bed glued to my aromatherapy diffuser and jump-starting my lungs with the Ventolin every few hours like clockwork because my lungs didn’t feel like being lungs.  Tomorrow is Independence Day which I’ve really enjoyed the past few years (more for the family/framily togetherness than patriotism).  But since every part of my body and all their grandmothers decided to cop an attitude,  I’ll probably be spending most of the weekend with Netflix.

-fireworks.  Every year I have to ditch the hearing aids for a few days over the 4th because of all the legalized stupidity, a.k.a fireworks.  I really don’t appreciate this.  The Lupron shots made my existing hearing loss and crappy speech perception even worse, so going without my aids for a few days is just great.

-the fact that I am exactly 28 days away from seeing the fibro specialist, yet I feel bonkers horrible today.

Okay, you’re probably sick of all my complaining.  Have a safe and fun holiday weekend!

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Love/Hate Update 6/10/15

I haven’t been writing much on here because I’m in the midst of some pretty intense self-discovery.  I’ve been writing, but it’s stuff that I don’t feel comfortable sharing, at least not right now.  Here’s a love/hate update since I haven’t done one of those in awhile.

Love:

-yoga

-red nail polish

-reading outside

-reading yoga blogs from people of different religions and perspectives, especially other women who cover for whatever reason

Hate:

-when “Christians” spew anti-Muslim sentiment.  Seriously, cut that the frack out.

-pollen

-the fact that soft pretzels have gluten.  (Seriously, whose yarn-headed idea was that?!)

-having to have the flexibility of a rubber band regarding future career plans

More in-depth update

I feel like my health situation has just about turned my life upside down, and in so many ways I don’t even feel like the same person I was when I started blogging (in both good and bad ways).so I thought I would give a more detailed update.

I’m pleased to report that I can now eat dairy in moderation!I can also eat any fruits and vegetables, though I have to be careful with acidic stuff on days I feel nauseous. I am gluten-free for the time being, but eating a couple of regular crackers today did not cause any symptoms. So I may be able to reintroduce more gluten into my diet so I can at least have the occasional treat. I really need a soft pretzel. Just thinking out loud here!
I’m currently experiencing a significant level of pain and mobility issues due to my fibromyalgia. Typing can be very exhausting and painful because of the pressure on my joints.i’ve got Siri on my phone and that is how I am texting, emailing, blogging, and using Facebook.I am having intermittent issues with blog post formatting, so please excuse grammar errors and weird spacing in my blog posts.
I’ve been asked how I am able to hand write, draw, and crochet. Those activities don’t put pressure on my joints in the same way as typing. I hold my pencils sideways, and I use pens and crochet hooks that have grips.The battle plan for my fibromyalgia treatment is kind of up in the air. There are lots of options for treatments, therapies, specialist at Cetera.there is a lot to be said for and against each option, just like with any kind of medical situation.
I honestly don’t know how much I will be writing about my treatment in the beginning. This is both because blogging takes a lot of work right now, and because I am still in the adjustment phase. It may be helpful for others to read about that phase ofA diagnosis, but I am not ready for that yet. Besides, a huge part of the emotional survival pieces thinking and writing about non-illness stuff. I think it would really help me if I put more effort into blogging about those things when I do have the energy to blog.
Have a great weekend, and I will be back on as I’m able!

Love/Hate Update

Love:

-yoga routines designed specifically for back pain

-figuring out how to get the blooming laundry up the blooming stairs independently.  Just being honest here!  Anyone with any kind of mobility issues knows what I’m talking about!

-warmer weather

-text chats with my sister in which we debate on whether or not vultures are gross and unnecessary.  (I lost one, by the way.  My claim that all the vultures in Disney movies are creepy did not stand up to the fact that my sister has a biologist friend who is studying vultures.)

Hate:

-pollen.  Been hanging out in Hotel Yellow Zone a lot lately.  The asthma doc said it’s going to be a rough summer allergies/asthma-wise.  She wasn’t kidding!  Oy.

-Benadryl tablets.  Is it just me, or are they the most unnatural shade of pink ever?  Seriously, they look like they’re radioactive.

-how often I read about spiritual abuse these days.  Don’t get me wrong, I love that more people are being brave and telling their stories.  But said stories never should have happened in the first place.

-when people deny the existence of spiritual abuse out of sheer arrogance and stupidity

-how difficult it can be to form meaningful relationships after being in toxic church environments

Love-Hate Relationship

Sorry I’ve been so incommunicado. Health stuff has been kicking my butt yet again. There is so much I want to say about the stigma of physical illness and traditional medicine, but that will have to wait until I know which end of me is up.

I’ve been doing the “Love/Hate updates” when I want to write but have no idea what to write about. But lately I’ve been thinking about the things that I both love and hate at the same time, so without further ado, here is my List of Things I Both Love And Hate:

1.) My Hair

I love how it’s finally growing back after I lost a bunch of it to a medical treatment for my endometriosis. I hate how indecisive I am about how short I do or don’t want to cut it while the rest of it grows back. I hate how thick and rebellious it is. I could really relate to Merida in “Brave”, let’s put it that way.

2.) The mind-body connection

I love how practicing mindfulness has a positive effect. I hate how emotional stress kills my appetite and makes me want to toss my cookies.

3.) Traditional medicine

I love how my odds of dying of smallpox, scarlet fever, whooping cough, polio, etc, is slim to none. I love how there are more treatment options available than ever before. I hate it when doctors don’t admit they don’t know something. I also hate it when people who don’t know anything get paranoid about side effects when they don’t understand that sometimes diseases themselves are worse than side effects.

4.) Alternative medicine

I love how some alternative treatments can reduce my use of pain meds and other traditional treatments. I really love herbal tea. It’s my new coffee, since I can’t have coffee anymore. I hate how under-researched alternative medicine is. I hate that many doctors shun it simply because they don’t understand it and get all hung up on “non-FDA approved” and whatnot.

5.) Asthma meds

I love how they help me breathe. Breathing is a really really good thing. You don’t fully appreciate it until your lungs cop an attitude. I hate how every inhaler out there tastes like burnt rubber. We’ve created vaccines, invented lightbulbs, put people on the moon, and yet we still haven’t invented an inhaler that doesn’t taste like burnt rubber. Go figure!

Okay, that’s about all I have energy for today. Hope you’re all having a wonderful Thursday!

Love/Hate Update 1/18

I’m pretty short on energy today so this is going to be brief.

Love:

-Celestial Seasonings Cranberry Vanilla Wonderland Tea.  My sister gave it to me fr Christmas.  It’s only available during the holiday season, so I plan to stock up next year!

-Foyle’s War.  It’s an extremely well-done BBC drama about a police detective during World War Two. If you like Poirot, you’ll like this.

-playing Solitaire and Freecell on my iPhone.  It’s more fun than it should be.

Hate:

-the stigma of physical illness

-the fact that people think there is no such thing as a stigma against physical illness

-Minnesnowta winters.  The idea of flying south sounds pretty good right about now.

-my tendency to support other people’s goals but neglect my own

Love/Hate Update 11/21

Sorry I’ve been so scarce lately. I’ve been having a lot of health issues, including pain in my fingers, which is making it difficult to type a lot of the time. Once everything’s been officially diagnosed I will share what’s going on. I really didn’t want to, but it’s starting to look like my health issues are a bit like rock and roll, a.k.a they’re here to stay. (Reference to a dorky 50’s song I’m sorry to say I’ve heard!)

Here’s a super quick Love/Hate Update, since typing can be torture these days.

Love:

-herbal tea

-snow! When I’m watching it, that is. It becomes less pretty when you have to drive or walk in it.

-Netflix

Hate:

-when my cat sits on my head while I’m listening to my mindfulness recordings. Once you have a feline on your head, the whole thing becomes a lot less relaxing and mindful. Just saying.

-when people tell me I’m “too young” to have chronic health issues, as if I don’t wish the conditions would have asked my permission before camping out in my body

Really Hate:

-when people tell me I can’t be a feminist and shop at a craft store.  I don’t even know how to respond to that one.

-when people tell me I “don’t look sick.” Ugh. I can’t even.

Okay, that’s about all my fingers have energy for right now. I probably won’t write again until after Thanksgiving so I hope everyone has a wonderful holiday weekend, and I’ll write again when I can!

Love/Hate Update

Love/Hate Update 11/8

Love:

-”Poirot”. If you haven’t seen it, you need to!

-”The Big Bang Theory”. Rock, paper, scissors, lizard, Spock!

-The fact that the hubby and I are sloooowly unearthing the living room under all the boxes

-my fabulous red converter mittens

Hate:

-Orthodontia. I’m 26, and I would love to lose this classic hallmark of adolescent angst, but nope. My teeth are strong-willed and free-form enough that I will probably be wearing my dental device of torture every night as long as I’m hanging out on this side of eternity. I don’t care what the dentist tells me, it is not a “standard upper Hawley retainer.” It’s a dental device of torture. Let’s call it what it is, people! If at some point I lose the battle for the separation of teeth and another set of metal railroad tracks, I’d totally be able to walk into a high school and be mistaken for a student. Gah.

-when people complain excessively about having colds. I’m still trying to figure out how much I want to share publicly about my health issues, but I’ve been through enough that my patience for people’s complaints about colds is nonexistent. If you get this bent out of shape over a cold, you wouldn’t last ten seconds in my life, I can tell you that right now.

-just about everything involving Kiera Knightley. She recently posed topless in the name of feminism. That’s a surefire way to stay off my good side. I will be blogging more about this in the future because this is about as backwards as it gets.

-feeling like I have to justify all the ups and downs in my spiritual life over the past year or so. I have all these questions and ups and downs because I actually use my brain and think about stuff.

Okay, I think that’s about it. Have a wonderful weekend!